I have to say that my warm, fuzzy feeling about sending Ellee to this school dropped after the uncoordinated effort to get everyone together for a "diabetes meeting" before school started. We *finally* had our meeting, but it was the day before school and afterwords I was not 100% comfortable. I'm sure that any parent who has a child with a disability feels that no one understand what they are going through or knows how to care for the child like they do. We decided to go with this school because they have a full time nurse and have had several T1D kids over the years, so I think that made me a little too confident.
I think part of MY problem is that I try to downplay everything that we have to do to control the T1D. I try to make it a little detour to the normal routine rather than make it a completely different route. That is all fine and well for me to do because I am the one who answers to the doctor. As I age, I am more into scientific experiments, the "lets this a try and analyze the results to see if it works." What I failed to take into account is the fact that the school can not take the liability of risky moves like this. I realized this half way through our meeting on Wednesday. The more all of this dawned on me, the more I could kick myself for not putting myself into a different mind set for her action/emergency plan. That in turns angers me because I wanted to have this meeting weeks before school started so that we had time to train and work out the kinks.
After I talk to Ellee tonight to see how things went, I think that a follow up meeting may be in order. I do owe them an apology for my previous mindset and come up with a new action plan. A new plan with will accommodate their policy of having a set guideline with proper documentation. By the end of the first day, I have spoke with the nurse twice. Either of which were bad calls, but certain things were not made clear. I do have to say that I felt so much better after the first phone call when she said that Ellee just left her office happy as can be and showing off her lunch and lunch bag! I can not describe the relief that brings me to hear that!
I wonder if she realizes how important today is. Yes, it's a big day that every child goes through. But not every child has had to spend every day of the last 16 months with some one who has had specific medical training to take care of them. There are 6 of us who are trained to take care of her and this is the first time she has been able to go some where with out one of us. I am excited because I know she needs this independence, but as a mom, I'm a nervous mother hen!
I can't wait to talk to her tonight to get her views of today!
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